Get Involved


Join us in raising funds and awareness for children with Congenital Heart Defects. All proceeds are tax-deductible and will go directly to the Heart Center at Children’s Hospital Los Angeles. Any amount, great or small, will make a difference in the lives of many young heart patients and their families, and will help create hope and build heart-healthy futures for children like Luca, and beyond.


Incidence, Morbidity & Mortality

  • Congenital heart defects are America’s and every country’s #1 birth defect. Nearly one of every 100 babies is born with a CHD.
  • Congenital heart defects are the #1 cause of birth defect related deaths.
  • Congenital heart defects are the leading cause of all infant deaths in the United States.
  • Each year approximately 40,000 babies are born in the United States with a congenital heart defect. Thousands of them will not reach their first birthday and thousands more die before they reach adulthood.
  • Each year over 1,000,000 babies are born worldwide with a congenital heart defect. 100,000 of them will not live to see their first birthday and thousands more die before they reach adulthood.

Lifelong Disease

  • Almost half all children and adults with complex congenital heart disease have neurological and developmental disabilities.
  • There are an estimated 2,000,000 CHD survivors in the United States.
  • For the first time, more than 50% of the CHD survivors are adults.
  • 10% of all CHD cases evaluated in an Adult CHD clinic are first diagnosed in adulthood.

Economic Factors

  • 91,000 life years are lost each year in this country due to congenital heart defects.
  • The cost for inpatient surgery to repair congenital heart defects exceeds $2.2 billion a year.

General CHD Facts

  • More than 50% of all children born with congenital heart defect will require at least one invasive surgery in their lifetime.
  • There are more than 40 different types of congenital heart defects. Little is known about the cause of most of them. There is no known prevention or cure for any of them.
  • In the United States, twice as many children die from congenital heart defects each year than from all forms of childhood cancer combined, yet funding for pediatric cancer research is five times higher than funding for CHD.

Research Allocations & Impact

  • Congenital heart defects are common and deadly, yet CHD research is grossly under-funded relative to the prevalence of the disease.
  • Of every dollar the government spends on medical funding only a fraction of a penny is directed toward congenital heart defect research.
  • The NHLBI has stated that Congenital Heart Defects are a serious and underappreciated global health problem.
  • In the last decade death rates for congenital heart defects have declined by almost 30% due to advances made through research.

SOURCE and for more info:


2 thoughts on “Get Involved

  1. Pingback: Straight from the Heart | At the Heart of it All

  2. Hi I’m Lynette Unger. I come from a small town called Buckhannon, West Virginia. This isn’t easy for me to write as my HLHS baby passed away at 14 days old. I would love to get some insight on how to start a campaign on the east coast.
    My baby boy was born on May 31 2015 and passed on June 14 2015.
    I myself have been seeking monetary donations due to lack of funding when my fiancé was put of work for a month. He worked a month then we were in the hospital for the 14 days God blessed us with our handsome baby. His name BTW is Creedence Jayce Moore he was healthy in size at 7 pounds and 15 ounces at birth. He had a beautiful complexion and an overall amazing appearance. His heart was more severe then thought his aorta was way smaller then the typical hypoplast. His lungs were hypoplast and he was in kidney failure the second day after his surgery. Infection was setting in. I’m not sure who or how but I too would like to spread my story and bring people aware of this!

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